@article{esj 190, author = {Claire O'Neill}, title = {Caring for the Terminally Ill: Nursing a Patient with Oculopharyngeal Muscular Dystrophy}, volume = {2}, year = {2010}, url = {http://publications.essex.ac.uk/esj/article/id/190/}, issue = {2}, doi = {10.5526/esj136}, abstract = {<p class="MsoNormal" style="margin: 6pt -2.3pt 6pt 0cm; line-height: 22px; font-size: 11pt; font-family: Calibri, sans-serif; caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); text-align: justify;"><span style="font-family: "Adobe Garamond Pro", serif;">OPMD is one of the Muscular Dsytrophies (MD); inherited conditions, characterized by progressive weakness and degeneration of skeletal muscles (Lovering et al 2005). OPMD is an autosomal dominant form, of adult-onset, presented by progressive eyelid ptosis and dysphagia, followed by involvement of other muscles of the head and neck, and eventually proximal limb weakness (Emery 1998). This essay demonstrates</span><span style="font-family: "Adobe Garamond Pro", serif;"> advanced understanding of the impacts of OPMD on the physiological, social and psychological functioning of individuals, their family and society. The essay identifys the needs for nursing intervention and, informed by current best available evidence and in conjunction with members of the multi-disciplinary team, formulates effective methods of care with OPMD patients to promote comfort and functional ability.</span><span style="font-family: "Adobe Garamond Pro", serif;"><o:p></o:p></span></p>}, month = {5}, keywords = {Muscular Dystrophy,nursing,OPMD.}, issn = {2633-7045}, publisher={University of Essex Library Services}, journal = {Essex Student Journal} }